The search for a mom continues for the life-saving game of her 7-year-old son’s bone marrow

A mom from Butler County has been working to spread the word about finding a match for her 7-year-old son since October 2021, when she learned that she has a rare autoimmune disease that affects only one in 1.6 million people. This Mother’s Day, Missy Ramirez shared her story of fear and hope for her son, Jax Ramirez’s battle with IPEX. The only possible cure is a bone marrow transplant, and out of the millions registered to donate, no one is up to Jax. “For people of color it is really difficult to find someone just because of the lack of diversity in the donation.” Ramirez said. With the uncertainty of the disease, Missy said they need to move fast. “We have to find a match as long as Jax is healthy, and it’s turned out to be more difficult than I thought, but I’m not going to give up hope,” Ramirez said. Over the past 7 months, she and her family have organized numerous donor initiatives and helped nearly 4,000 people register to become potential donors. ” Our mission is not only to save Jax, but all other people as well. Eighteen thousand people today are looking for their perfect life-saving companion, “Ramirez said. To register, send a” JAX “message to 61474 and a swab kit will be sent to your home. You may never match anyone who needs blood or marrow donor bone, or you may be able to save a life. “I wake up every day and see him hopping around and smiling, but all in the back of my mind I know he might be taken away from me the next day”, Ramirez said. For details on upcoming live donor events, follow “Be the Match for Jax” on Facebook, Instagram and Tiktok.

A mom from Butler County has been working to spread the word about finding a match for her 7-year-old son since October 2021, when she learned that she has a rare autoimmune disease that affects only one in 1.6 million people.

This Mother’s Day, Missy Ramirez shared her story of fear and hope for her son, Jax Ramirez’s battle with IPEX.

The only possible cure is a bone marrow transplant, and out of the millions registered to donate, no one is up to Jax.

“It’s really hard for people of color to find someone just because of the lack of diversity in the donor campaign,” Ramirez said.

With the uncertainty of the disease, Missy said they need to move fast.

“We have to find a match while Jax is healthy, and it turned out to be more difficult than I thought, but I won’t give up hope,” Ramirez said.

Over the past 7 months, she and her family have organized numerous donor initiatives and helped nearly 4,000 people register to become potential donors.

“Our mission is not just to save Jax, but to save all other people. Eighteen thousand people today are looking for their perfect life-saving mate, “Ramirez said.

To register, send a “JAX” message to 61474 and a swab kit will be sent to your home.

You may never match up with anyone who needs a blood or bone marrow donor, or you may be able to. save a life.

“I wake up every day and see him bounce and smile, but in the back of my mind I know he could be taken away from me the next day,” Ramirez said.

For details on upcoming live donor events, follow “Be the Match for Jax” at Facebook, Instagram Other tick tock.